Article Details
| Citation: | Carlson, S.R., & Wilt, C.L. (2020). Learning about and qualifying for Home and Community-Based Services Waivers: Families’ perspectives and experiences. Journal of Vocational Rehabilitation, 53 (1), 17-28. |
| Title: | Learning about and qualifying for Home and Community-Based Services Waivers: Families’ perspectives and experiences |
| Authors: | Carlson, S.R., & Wilt, C.L. |
| Year: | 2020 |
| Journal/Publication: | Journal of Vocational Rehabilitation |
| Publisher: | IOS Press |
| DOI: | https://doi.org/10.3233/JVR-201082 |
| Full text: | https://content.iospress.com/articles/journal-of-vocational-rehabil... |
| Peer-reviewed? | Yes |
| NIDILRR-funded? | Yes |
Structured abstract:
| Background: | To support adults with intellectual and developmental disabilities to experience a better-quality life, national, state, and local governments offer a variety of long-term services and supports. However, the responsibility of qualifying for and accessing long-term services and supports often falls outside of these systems and on the adults with intellectual and developmental disabilities and their families. |
| Purpose: | Given the family’s role in securing long-term services and supports, this qualitative study investigated the perspectives of families of adults with intellectual and developmental disabilities and their experiences learning about and qualifying for Home and Community-Based Services Waivers, a common funding source for long-term services and supports. |
| Data collection and analysis: | Relying upon qualitative methods associated with grounded theory, six mothers of adults with intellectual and developmental disabilities from three states were interviewed. |
| Findings: | Analysis of interview transcripts revealed five themes addressing: families’ reasons for seeking HCBS Waivers, families’ experiences learning about HCBS Waivers, frustrations encountered, families’ suggestions for change, and parents’ characteristics and roles. |
| Conclusions: | Interview results provided a nuanced understanding of participants’ perspectives and experiences, highlighting their active participation, emphasizing the challenges they have encountered, and uncovering their suggestions for change. Implications for research and practice are discussed. |
| Disabilities served: |
Cognitive / intellectual impairment Developmental disabilities Multiple disabilities |
| Interventions: |
Community-based instruction Transition services Needs and resource assessment |
| Outcomes: |
Other |